@ 233.2 kg   Lymphoedema   @ 207.7 kg

Every day challenges of my life, physically, mentally & emotionally.
About my family, pets, weight loss & exercise plus becoming healthier & managing my lymphoedema & other medical problems.

Thursday, September 26, 2013

Housebound

Lost 500g since yesterday, weighed after night sleep, leg was down a little but by no means back to normal and sure enough, swelled back up again within an hour of sitting up

Lot of pain in the left leg too tonight, tight around the knee, above and below like a tourniquet wound too tight?  Toni tried massaging it before she went to bed,helped a little but still immense pain and I'm literally counting down minutes till I can have an Endone... 20 mins to go and counting!

Don't think I'll be up for gym tomorrow, truthfully don't think my leg would fit on the car seat properly without getting caught on the lever under the front seat, which is not only dangerous but potentially life threatening as the lever has in the past caught and tore the skin under my leg and it took ages to heal and with almost 100% certainty of a cellulitis episode! nope! I need to be extra careful.  We came up with a trick of putting a towel draped over my seat and falling to the floor over the front which covers up the lever and has been really good in helping my leg slide out without getting caught! but that's under the assumption that the leg isn't swollen, so now it is, hmm, I think I'll back housebound for a while till it goes down more :(

Ordered and paid for another 11 bracelets (10 for ChrisH) so hopefully arriving before end Oct then I can send them onto ChrisH and her girls.  Hope they like them all but I think they will, I know Toni and I love ours.

Think I need a new video card too for the PC as it's all pixelated and looks crap esp when playing games like WOW and Minecraft, I need my games!

Tired, frustrated, determined and sad, feels like I've gone backwards a lot.

Wednesday, September 25, 2013

Weight results - 25th Sept

Start weight: 213.5 kg / 469.7 lb

Week 1 lost -2.9 kg
Week 2 lost -3.8 kg
Week 3 lost -3.4 kg
Week 4 gained +1.8 kg
Week 5 lost -0.4 kg
Week 6 gained +1.0 kg (cellulitis attack 2-3:00 pm straight after weighing in)
Week 7 lost -1.0 kg (now back to 2 tab twice daily Keflex)
Week 8 lost -0.8 kg
Week 9 gained +1.3 kg (cellulitis attack Tues 2.30 am, clindamycin tabs)
Week 10 gained +3.3 kg (very swollen heavy right leg)

Total in 10 weeks: -4.9 kg / 10.78 lb
Average: -0.49 kg / -1.078 lb

Previous weight: 205.3 kg / 451.70 lb
Today's weight: 208.6 kg / 458.92 lb

Very depressed about this weighing result.  Much as I know with my head it's mostly if not all due to the heaviness and swelling of the right leg as it's almost impossible to lift without help, it's really hard emotionally accepting the result.

Toni wants me to weigh each day to try and get an idea of the fluctuations plus see when my leg comes back down again, I'm just over it all to be truthful, but she won't let me give up.

She even starting tracking for me as I had given up after losing all the data couple days ago, again I just can't get motivated enough to do it right now, so she's gently pushing me

I am in so much pain tonight, can hardly swing my right leg at all and it's just so so heavy, the damn OxyContin isn't even blunting it at all, hurts so much!


Wednesday, September 18, 2013

Weight results - 18th Sept

Start weight: 213.5 kg / 469.7 lb

Week 1 lost -2.9 kg
Week 2 lost -3.8 kg
Week 3 lost -3.4 kg
Week 4 gained +1.8 kg
Week 5 lost -0.4 kg
Week 6 gained +1.0 kg (cellulitis attack 2-3:00 pm straight after weighing in)
Week 7 lost -1.0 kg (now back to 2 tab twice daily Keflex)
Week 8 lost -0.8 kg
Week 9 gained +1.3 kg (cellulitis attack Tues 2.30 am, clindamycin tabs)

Total in 9 weeks: -8.2 kg / 18.04 lb
Average: -0.91kg / -2.00 lb

Previous weight: 204.0 kg / 448.80 lb
Today's weight: 205.3 kg / 451.70 lb

Frustrating, was sick early Tues morning (2:30 am) turned into another cellulitis attack and I had to go on clindamycin tablets as I was so low on Keflex that I couldn't increase it enough to cope with this episode, so now on 2 clindamycin tabs every 6 hrs plus OxyContin & panadol plus endone as needed in between.

Took a while to break the fever this time round but had no choice about staying at home as Michael had gone up the Central Coast taking my mum for her 2nd eye surgery and left home 5:30 am Tue and came back home Wed afternoon.

Mum is doing really well, now has had both eyes done with virtually no pain and she says she sees so much more clearly now which is fantastic.

If only it helps with her driving! (Lol)

My right leg is getting redder so will need to keep an eye on that but all I can do is rest, elevate, hydrate and be patient.

Oh hopefully my doctor is back from holidays so we can get more Keflex, clindamycin and endone.

Study has taken a back seat AGAIN which is frustrating, but the kids keep telling me to just focus on now, getting well then doing "normal" things again

Patience bah humbug!

Tuesday, September 17, 2013

Tue 17th Sept - sick AGAIN

Today was supposed to be Toni's & I girly day / night cause Michael had to drive up Central Coast to pick Mum up and take her for her eye surgery today, then he'd go back to Mum's place and wait till called to go pick her up, then he was staying the night so he could take her to her local dr Wed for checkup, then all being well, he'd be home Wed night

So Toni got our treats yesterday, our shows to watch, games to play etc

But 2:30 am bam was hit with the strongest, worse attack cellulitis for a very long time, but I made Michael go for mum, we just have to be careful here, Toni is really carefully looking after me especially since we don't have a car in case I get worse and need to go to hospital

Highest temp 38:8 atm but it's up and down as in chills and fever and shakes and wanting to throw up and my right leg is in such agony, I want to cut it off!

Gotta go I'm all over the place and can't stop crying :(

Wednesday, September 11, 2013

Weight record - 11th Sept 2013

Start weight: 213.5 kg / 469.7 lb

Week 1 lost -2.9 kg
Week 2 lost -3.8 kg
Week 3 lost -3.4 kg
Week 4 gained +1.8 kg
Week 5 lost -0.4 kg
Week 6 gained +1.0 kg (cellulitis attack 2-3:00 pm straight after weighing in)
Week 7 lost -1.0 kg (now back to 2 tab twice daily Keflex)
Week 8 lost -0.8 kg

Total in 8 weeks: -9.5 kg / 20.19 lb
Average: -1.18 kg / -2.59 lb

Previous weight: 204.8 kg / 450.56 lb
Today's weight: 204.0 kg / 448.80 lb

Happy with this result

Went to gym last Fri and Tues, feeling great plus doing my exercise routines in bed as well most days.

Wednesday, September 4, 2013

Weight record - 4th Sept 2013

Start weight: 213.5 kg / 469.7 lb

Week 1 lost -2.9 kg
Week 2 lost -3.8 kg
Week 3 lost -3.4 kg
Week 4 gained +1.8 kg
Week 5 lost -0.4 kg
Week 6 gained +1.0 kg (cellulitis attack 2-3:00 pm straight after weighing in)
Week 7 lost -1.0 kg (now back to 2 tab twice daily Keflex)

Total in 7 weeks: -8.7 kg / 19.14 lb
Average: -1.2 kg / -2.64 lb

Previous weight: 205.8 kg / 452.76 lb
Today's weight: 204.8 kg / 450.56 lb

Today I finish the extra Keflex tablets I've been on since this last mini episode, so now back to 2 tabs twice daily plus one OxyContin twice daily and my usual Vit D and thyroxine tablets, but a great relief to come off the extra antibiotics.

Leg has been a little bit sorer today and we found quite a large area on my leg that is infected, so Toni helped clean it up, put some cream on and we'll keep an eye on it and when my Dr returns from her holidays, I might get some advice on what antibiotic topical cream or ointment I can safely use ona lymphoedema  leg with all it's relevant skin problems.

Resting up most of today but oh yeah got my transcript from Tafe letting me know I passed Cert IV Information Technology Web Design and was eligible to receive the Certificate :) great news, now I have to concentrate on my new course.

Roll on new week.

Sunday, September 1, 2013

Sat evening

So tired all the time it's frustrating, no sooner I fall asleep, hour later I'm wide awake, in pain, sweating and needing to move my legs around.

So get up, get help to shuffle to the bathroom then back to bed, get comfy, take tablets, drink, eat something, grab iPad, read or listen music then find myself falling asleep.

Hour later I'm wide awake and so on and so on, you get the point.

But I am definitely better than Wed afternoon that's for sure :)

So tomorrow I should be well enough to leave the house for dinner up at our local Inn for Mum's dinner which I am looking forward to, seeing my mum after her eye operation and giving her a big hug.

I know I will be back in bed resting as soon as they leave, but it's going to be worth it.

We've adjusted my medication a little to drop one of the pain meds back to Ad Hoc rather than every 6 hrs, I'm going to try doing without it and seeing how's the pain threshold is but not being stupid about it either, if I need it I will take it.

But I am continuing to have the twice daily OxyContin though so that's ok and I'll be dropping the Keflex back down to "normal" doses 7 days after this all flared up so next Thu I'll be back to 2 tabs twice a day which will be good, hate all these extra tablets I'm taking at moment, really upsets my stomach I'm sure!

Looking ahead, I'm hoping all being well, returning to gym on Tues afternoon, even if this one is just driving there, sitting while Toni does her workout then returning home, I just want to try going out for that length of time and seeing how my body reacts then maybe doing it again on Fri and even working out myself, anyway, play it by ear on the day I think.

Night all :)


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